Alysia Rafalsky, our Care Services Coordinator for Central Alabama explains the important of home visits to those living with ALS and their families - “Home visits allow people to talk about difficult issues in a safe and comfortable environment. It also makes it more likely for me as a Care Services Coordinator to identify needs that may not have been as easy to notice in a clinical setting.” Your gift of $100 provides a personal home visit to a newly diagnosed patient. Give today at ALSAlabama.org! #ALSAwareness#31in31Challenge
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"The word “amyotrophic” comes from Greek roots that mean “without nourishment to muscles” and refers to the loss of signals nerve cells normally send to muscle cells. “Lateral” means “to the side” and refers to the location of the damage in the spinal cord. “Sclerosis” means “hardened” and refers to the hardened nature of the spinal cord in advanced ALS."
My first time in Vegas and it was with the family 💙 My mom rocking that crop top and has her pose down 👌 Mom and Dad took us kids walking around the strip and I remember being so amazed by everything going on. Thank you mom and dad for taking us on family vacations 💙
Pretty sweet day for the Rubatts yesterday at the Coach Cassidy Classic. Sally defended her title from last year (1st canine across the finish line) and Ava won a free ice cream cake for being the youngest participant! #ALS#alsawareness
Just keeping it real. ALS stole their mother from my kids. They still needed her here. Support funding and research for ALS. #helpfightals#als#alsawareness#findacure or at the least #buymoretime In one year she was gone. There was only one pill to help her. ONE PILL!
HUSH!🙊 HOW LONG CAN YOU GO WITHOUT SAYING A WORD? Comment with how long you made it. 💙
Having ALS means losing the ability to speak. It begins with slurred speech and in most cases will eventually become no speech. ---------
How frustrating it must be to want to join a conversation with friends, tell someone you're proud of them, or maybe just answer the phone! Yet your body is failing you and you can no longer talk. 😤 --------- Luckily we live in the modern age and technology provides patients with ALS (PALS) the ability to communicate using different devices. Most of those are eye gaze systems where PALS control the computer with their eyes. Wow! We are grateful for such technology. --------- Tomorrow is the @projectals Don't Talk-A-Thon to raise awareness and funds for ALS research. Click the link on the pic to get to their page to learn more and/or donate. 🙊
Try this challenge any time!
As some may or may not know my grammie was diagnosed with ALS earlier this year. It’s an awful disease and I hate seeing my mom and family so sad ! I wanted to help spread the word about this rare, awful disease by sharing it with all my Instagram friends. Every little bit helps whether it’s spreading the word so people become more aware of it or if you would like to donate. The link will be in my bio. Thanks friends for even taking the time to read this it means a lot to me and my family ! #ruperttheminipig#als#alsawareness#findacure
De 9-12 aujourd'hui j'étais à l'académie ExtravaDanse de Rockland ou ce trouvais une levée de fond pour SLA (ALS). Bravo à Christina Et Sophie pour l'organisation de ce bel événement!
25% des ventes de ce matin allais directement en dons pour la cause 🙏🏻 Je suis fière et surtout heureuse de remettre 52$ pour cette cause qui me touche droit au cœur!
"Scientists are seeking to understand the mechanisms that selectively trigger motor neurons to degenerate in ALS, and to find effective approaches to halt the processes leading to cell death. "
She said let's go to the beach! But with mom it had to be an adventure. We were all home from school, we packed the ice chest and Selena drove that red van to Santa Monica. My mom fought walking thru the sand with cane to watch her babies play in the water and bury each other in the sand. We walked around the pier and ate frozen bananas. We may not look happy in the picture lmao but it was such a fun beach day with just our mom 💙
We are in need of a special #bike that would allow a rider to carry along his friend with #ALS This would need to have some sort of strap or seat belt and be really stable. Preferably something with more than two wheels. Please share and let us know if you have any ideas. Thanks 🙏🏻 similar to the one pictured. Looking for a loaner or donation. #thanks#alsawareness#jxcycle#workbike#cargobike#cycling
Your story is inspiring for sure!! 🙏🏽thank you for sharing your fight, you are a true warrior my friend!! #Repost@pimsanguan with @repostapp
@cody_nolove and I watched @teamgleason documentary last night ...it was beyond inspiring! Thank you so much for sharing your story! You and your wife have are the definition of true love & never giving up! I recommend everyone to watch this incredible, raw documentary! #alsawareness#teamgleason#nevergiveup Be grateful for the life you have !!! Live your life to the fullest💫
May is ALS awareness month. I am blessed to be the daughter of a women who fights this disease everyday. @dawnshifflett does not allow this illness to define her and I have never seen someone find grace in a situation that truly feels unfair. So what’s Gods blessing? Well, this Woman is blessed with FIVE grandchildren who don’t see the wheelchair, who don’t hear the lack of speech, who don’t see illness. All they see is a Nana who loves them more than anything. I am proud to be a Shifflett so I am able to share her name. #als#alsawareness#lougehrigsdisease