Galaxy leggings! You can find these and other fun space stuff at amazon.com/shop/frillability 👽✨ Some days I have to fake being happy until I start to feel it. When I’m in a bad mood, it’s tough, but I need to challenge myself to find good when it’s a rare commodity. Today, my outfit makes me feel more like myself. What’s keeping you going today? 🌟🌈 #frillability#makegoodwithyourability#justgotmyzennis (P.S. This brand of leggings run small and don’t have a wide offering of sizing, but these aren’t the only fun pair I carry!)
First picture... what would be just one month of injections when I was diagnosed at 7 and began working to stay alive every day.
Second picture, despite an insulin pump site change, pricking my fingers about 5 times since last night, taking insulin, and not eating any carbs/drinking a ton of water, doing EVERYTHING my doctor says... and I’m still over the target range of 80-120. 🤬
I’m strong as hell and I will get through this high sugar like I’ve gotten through every high sugar over the past 21 years as a type 1 diabetic... but man is it frustrating on days like this. ☹️
If you know a type 1, hug them harder. We’re trained to make it seem to society like nothing is wrong. Some days it’s harder to live with the knowledge that we’re on borrowed time.
MY TYPE ONE FRIENDS: What’s one thing you wish people without T1D knew?
Finally it's here!! I pre-ordered this a couple months ago? I can't show the other items but the main feature is the Yearly Jar of "Chronically Fabulous" Acts of Self Care. So you know me I share everything. 😊😂
The outer packaging is adorable already, "You've got Spoonie Post" which made me chuckle.
Hannah has created a little pamphlet guide to how to use the jar, I won't spoil it too much because I think everyone should get one. It has a key to the colours of the different pieces of paper, and a total of 52, one for each week. And because it's no where near Christmas I'm starting right now. (See the video at the end for this week's)
It's really adorable and really sweet and I definitely think it'll allow me some space each week, to just have me time. It's something that all of us should allow ourselves. .
I really love this product! I highly recommend you either treat yourself, or a friend or a loved one. It would make a fabulous gift for birthdays, Christmas or just because. One of the photos does have the details however I'll note them here for you. 👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇
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*(Disclaimer; I am not endorsed, nor paid nor provided this product at all. I have paid full price as a customer. I am happy to help other Spoonies, it's just something that I do, because it makes me happy.)
The thing about mental illness is that it makes you feel like you’ve lost control even when you haven’t. Whether it be your emotions, senses, thoughts, or muscles, there’s a overwhelming sense of helplessness. It pushes you so far down that for a split second you feel as though this is it. This is my reality and I can’t. There’s no discrimination on what you can’t do. You just can’t. •
But this is not your reality. You do have control over the way you feel. Before I knew what was going on with my health, I had no way of confronting what I was feeling or working through the attacks I was having because I didn’t know. But once I was able to learn and accept how my mind was affected and how it reacted to certain things, I could face those head on through breathing techniques, mindfulness, quiet, and reiteration. •
When before I would lose focus and muscle control and experience seizure-like attacks at the first trigger, there is now a recognition of when triggers pop up and I can work my way through them. In the same way someone with a missing limb has to teach their subconscious that their limb is no longer there, I have to remind my brain that my muscles are fine, that there’s no reason to freak out, and to keep breathing. •
Mental illness is real, but it doesn’t have to control your life. It’s hard work and much easier to succumb to the loss of control than to fight to regain control, but it’s so much more worth it to be in your life...living your life to the fullest.
Kidney Pain is actually getting worse each day 😭 Roll on Rheumatologist! 🌻
I am grateful for:
•My mum, who looks after me, listens to me, helps me and carries my burdens when I cannot with incredibly grace😊. •God, for giving me the hope and strength to face my challenges, and direction to my purpose.💛
•My cats, and animals in general, ‘cause aww😻
•My favourite books, for the escapism and magic they offer📖
•Life, joy and hope. I’m so lucky to live the life I do! 🌻
The past few days have been hard because I let them be hard. I let worry, anger, hurt and sadness take over. I let one person affect me. Why? Why do we do that to ourselves? Especially when it's one that is no longer in our lives? I have been thinking about this all day, somewhat upset with myself. Then I realized I was putting my focus where it shouldn't be. My focus shouldn't be on a past relationship that didn't work! My focus SHOULD BE and NEEDS TO BE on my relationship with Jesus! That is the relationship built on love, that is the relationship that has been reconciled! So many times we focus on what we don't have vs what we have. And I have a lot to be thankful for! "Our stories aren't finished until God says they are". 🙌💜🙏 #anxiety#anxietysucks#letgoandletgod#focusonwhatihave#jesusforgives#pastdoesntdefineyou#shereadstruth#fibrowarrior#fibro#invisibleillness#chronicallyfabulous
1 611 hours ago
The hardest part about being chronically ill; everyday is an opportunity to hide the truth, to tell everyone you’re fine. People genuinely want to make sure you’re okay but the thought of disappointment outweighs the knot in your throat and so you carry on with grace and a smile. I never say it’s easy, bc admitting your downfalls is really friggin hard; but I promise I’m trying, even if I don’t always let in the people I know care most. #chronicallyfabulous#chronicillness#nosleeptillinfusion
A few weeks ago, I saw my therapist and we talked about my chronic illness recovery. To my surprise, she told me I’ve been stable since last August. That’s almost a year. And while I know I’ve made a lot of progress, it doesn’t always feel that way... New blog post! Link in bio ✨
My spoon count is currently negative 😪 but the beach was a fun little pit stop 🌊
Went to the GI this morning. He ordered a stronger nausea med to take during my new GES, which will hopefully make him believe me and get some nutrition happening because I can’t live off of Gatorade forever. Then I went to my new chiropractor, whose office happens to be 4 miles from OCNJ so of course I had to stop at the beach. He thinks the accident caused my back to go out of line and pinch some nerves in my neck, which explains the pain and why I can’t move without hurting. He also said my vagus nerve, the one that contributes to gastric emptying, has probably been pinched too which is exasperating my GP. My anti-depressants could also be contributing, which I knew, but I’m hoping with a new chiropractic regimen I won’t have to worry about their effects as much.
Funny story of the day: twice I’ve had people ask me if I’m SURE I’m not pregnant. The first time I was just like “I’m not sexually active” which is mostly true; I’m not sexually active in the way they’re anticipating. The second time I was asked I’m just like “Well I’m GAY, so yeah I’m pretty sure”. My chiropractor was clearly surprised by this, but he handled it well. What he DIDN’T handle so well was me throwing up in the middle of his exam. In my defense, I felt it coming on and got up to grab the trash can, but he still looked pretty spooked. I don’t think he has many patients who almost throw up on him. I’m not surprised; I’m just extraordinary I guess 🤷🏻♀️
Having to re-cap the accident in detail a million times is so hard, especially since I drive myself and have to drive a lot for appointments and clinical and to and from school and work and everywhere. I had a panic attack after I left the chiropractor because I got in my car and flashbacks flooded my mind. PTSD is so hard. I’m doing the best I can but driving is inevitable and I’m not as okay as I could be. I hope it gets easier with time, because I still have panic attacks and throw up in fear when I’m in the car. It’s made me a pro at puking while driving though 🤢
1 2415 hours ago
Mother Nature at her finest, washing away everything that does not serve us 🌱🌧☔️
4 3815 hours ago
I think this is one of my favorite photo of Novee. She looks so grown up and ready to take on the world! She is pretty obsessed with all things babies these days and can even tenderly feed her brother a bottle pretty much on her own and puts the paci in when he’s crying! *heart melt*
This is her new doll for @hollysdolliesshop she is pushing around in her stroller.. it’s a sweet doll baby wearing her baby! It’s Little Mama approved!
To all my chronically ill warriors out there who wake up and fight every single day! 💪🏼🦋
AND to all the women in my life, never, ever be sorry for being strong and powerful individuals. Together we can change the world💙
I have definitely gained some weight since I had to stop working out (and since I ate whatever I wanted all week on vacation). I don't know how much, probably somewhere in the neighborhood of 10 lbs. In the past I would've completely beat myself up about this. .
I have come a LONG way. I am feeling totally un-phased by this weight gain. My goal is not to look like a fitness model. My goal is to be HEALTHY and HAPPY and keep my autoimmune disease in check. My goal is to teach this little girl, who is watching EVERYTHING I do, that her worth isn't tied up in how much she weighs or what size she wears. .
I might be up a few lbs, but I AM also currently happy, healthy, confident AF, IN REMISSION for over a year now, and teaching my daughter how to own who she is. And I honestly feel pretty good about all of that. 👊 #momsanddaughters#teachthemyoung#thrivingonwellness
COOL NEWS. I’m now a brand ambassador for Sick & Sexy Brand! (@sickandsexybrand) *
My entire life, I’ve felt awkward in my own skin. When I was five years old, my mom bought me a swim suit with a hole cut out in the middle that showed my stomach and I was SO embarrassed to be showing so much of my body. I lacked that confidence to feel good about myself. At the age of FIVE. *
I don’t have the time to live that way anymore. I’m juggling work, friends, church, volunteer duties, and most of all, a handful of chronic illnesses… and I’d like to no longer have that burden of “am I pretty enough?” or “is my body worth looking at?” or “am I enough?/too much?” on my shoulders anymore.
As @msnatasha_nicole , founder of Sick & Sexy puts it, “sexy” isn’t always about lust or seduction, it’s about what makes us feel confident and beautiful.
It’s HARD for me to break the habit of thinking that tells me I’m not pretty enough, not beautiful enough. So sometimes I have to rely on the supportive voices of others, like my closest friends, who have lifted me up over the years—but if that’s what it takes, that’s what I’m going to do—because it’s worth it. I’m going to replace those negative thoughts with their loving words. After all, they’re the ones that have to look at my face and body. *
I’m ready to continue living my life, chronically ill, with more and more confidence. When I see a cute swimsuit now, I’m going to buy it, even if it’s not for “my body type.” I’m going to sit up with better posture, because I deserve the space I’m in. I’m going to enjoy the clothes I wear. And that’s why I’m excited to be a Sick & Sexy Brand Ambassador. Because this is a journey, and I can’t wait for you all to join me. *
These two monkeys always make me laugh. Always pick me up when I’m down. They look after me and shower me with so much love when my chronic illnesses play up. The best baby sisters I could have asked for.
DID YOU KNOW???
Exercise and eating healthy have more benefits than weight loss??? Crazy huh?!
As most of you know I eat healthy and exercise daily but I’m recently struggling with insulin resistance which causes weight gain. No fun.
But...exercise and eating healthy have so many more health benefits which is why I fight daily to take care of my body! Because...I’m worth fighting for and SO ARE YOU👊🏻 •
Can you commit to taking care of your body and working out 4 days a week for around 30 mins? If this your wake up call come check out my snoop group for more info on what my fit community /challenge group is actually like and why it makes me excited every day to keep fighting the good fight 🥊 message me to be added to the snoop group
6 2822 hours ago
Meet this badass we 🖤 and our newest brand ambassador @shannern! She is a passionate health advocate for Dysautonomia and loves both graphic design and typography. She also has an awesome blog called Dysautonothankyou! Check her out!
Just one of the many signs and symptoms of Hashimotos that I had for years before diagnosis was an increased sensitivity to cold. I was freezing. All the time. I would always bring a sweatshirt and/or blanket with me everywhere. It was hard for me to get warm, and I would look at those around me and not understand how they could not be cold! My hands were the worst. They were always ice cold. Always. I am a touchy feely, hand holding, snuggling as often as I can type of person. Whenever I would reach out to hold my son’s hand or snuggle him, he would say some version of “Ah! Mom, your hands are freezing!” When I was finally diagnosed with Hashimotos and understood why I was always cold and why my hands were always freezing, I explained it to my son one day when he told me my hands were freezing for the millionth time. He looked right back at me and said, “Oh! You have HashiHands!” From then on, he did not seem to mind my ice cold hands anymore, and would just say some version of, “Oh, Mom, you have HashiHands.” So began my family’s nickname for my always freezing cold hands.
After I was finally diagnosed, I overhauled my nutrition and lifestyle choices and saw huge improvements with many of my symptoms. Within a couple of months, I noticed I was no longer freezing all the time. Within a couple of more months, I noticed I was rarely cold anymore. It was a happy day when I reached out to hold my son’s hand, and he proclaimed, “Mom! You don’t have HashiHands!” 🙌🏻
Serving looks even when spending the whole day in bed because of pain
Today has been a ‘Molly’s muscles are playing up so today will be spent in bed’ day. Luckily, I keep my makeup bag near my bed so I can feel like a princess, even when my body is playing up. Dealing with chronic pain is very hard but there’s always little things that help to make it better ❤️ #chronicallyfabulous#psoriasiswarrior#getyourskinout#spoonie