Amazing!! Thank you for sharing @jaime_king ❣️
#Repost@jaime_king with @get_repost
This boy! For all the parents who have children diagnosed with TGA and are terrified (as we were) we hope by sharing Leo Thames journey with you gives you hope that children with congenital heart defects grow up to be happier, stronger, more fearless kids than we would ever expect. Everyday he teaches me that what we are given we will overcome. And we will be immensely more aware of the beauty and gift that this life gives us. Our bodies are miracles. All children and families not only deserve but need health care so we must fight for all people in this country to have the necessary care to fully live the life God gave to each human. #leothames#happyboy@cedarssinai#chd#heartwarrior#hero
Love having people who love me, those are my kinda peeps! They grow em, I eat em! That's true love right there baby! 😉❤️ In the South tomato sandwiches are a hit. Bunny bread, mayo, salt, pepper and tomatoes. Store bought tomatoes are a big NO NO! They aren’t the same! Biting into a warm tomato right off the vine... nothing like it!
How do you like eating homegrown tomatoes? 🍅 Love hearing about others’ family traditions. Tomato sandwiches are definitely a tradition in the South, amongst others. That one is just one of the ones that we actually talk about. The others’ are either questionable or get buried in family secrets. 😜😂
7 676 hours ago
Rory had her six week cardiology check up today! It was a mixed bag. Her left AV valve (mitral valve) had moderate leakage, which is really disappointing. She will definitely need another surgery at some point. As of right now, we’re just watching it. We think it may be causing some swelling in her eyes, so we’re going to make some changes with her medications over the next couple weeks to see what happens. Otherwise, her echo looked good & she’s doing really well. This is her cardiologist, she’s been taking care of Rory since I was 22 weeks pregnant! .
Life will break you. Nobody can protect you from that, and living alone won't either, for solitude will also break you with its yearning. .
You have to love. You have to feel. It is the reason you are here on earth. You are here to risk your heart. You are here to be swallowed up. And when it happens that you are broken, or betrayed, or left, or hurt, or death brushes near, let yourself sit by an apple tree and listen to the apples falling all around you in heaps, wasting their sweetness. .
Tell yourself you tasted as many as you could.
Louise Erdrich, The Painted Drum
Apple of my eye
Taste it all.
And you are whole.
And you are fine.
And you are the beauty in the whirlwind mess of the world.
You are the beauty. .
To our friends at @tfwcentral THANK YOU for helping us spread awareness of #chd and for your “Spring Into Love” donation of $1329!!! The gym dedicated $1 to #theohhf for every time members logged their attendance with a FB “check in” and the hashtag #heartwarrior ❤️ Their fundraiser was a huge success! Thankful for your generous hearts 💛🖤 #spreadlove#fundraising#chdawareness
•Happiest birthday to one of the strongest little boys I know..... my #heartwarrior , my son ❤ I can't believe he's 5 already 😭 I got so emotional going through his pictures from when he was born, from the NICU to when we took him home. My sour patch kid 💛 I love you so much. God truly blessed me with you.• #alexjeremiah#alexs5thbirthday
One year ago today we were sitting in a pre op room waiting for you to be taken back for Open Heart Surgery. I’ll never forget the nurse that came to get you. She took one look at me and said “I know it’s tough mama, I’ll give you a few more minutes”. Your dad and I hugged you as tight as we could and said a prayer over you. When the Nurse came back for you, your dad and I held hands and walked you as far back as we could, staying as strong as we could. When we got to the doors where we couldn’t go any further, we gave you one last kiss and watched the nurse walk away with you, sending our hearts with you. As soon as the doors closed, your Dad grabbed me and hugged me. He knew I needed a good cry. I hadn’t had one yet. I didn’t want you to see me like that. We stood outside the doors and cried for a few minutes, and then went to the waiting room where everyone was waiting. We tried our best to keep it together over the next few hours until we could see you again. It had been a scary few weeks leading up to the surgery. Once we could see you again, I had almost a sense of relief that it was done and we didn’t have to watch you deteriorate anymore. Over the past year I have watched you grow, learn, and change in so many ways. Your not that frail baby that I handed over. Your an independent, loving, funny, strong willed, Heart Warrior. It’s such an honor to be your Mom and be able to be by your side every single day. Happy Heartiversary, Brody Michael. You and your perfect heart are loved more then you know ❤️ #heartwarrior#ohs#pacemaker#heartiversary
Peace out Miami! It’s been real... until next time... which may be in a few weeks 🙈 anxious to find out next week if we are 100% doing Cashes big open heart surgery in the next few weeks! I will keep everyone posted... but until then, I’ll remain on pins and needles 😬 we are almost home already and ready to rest! thank you to the team at #nicklauschildrenshospital@nicklauscardiacteam once again for treating us like family ❤️💙 #heartwarrior#tofbaby#preemie
8 8277:11 PM Jun 1, 2018
This kid cracks me up!!!! He loves loves loves being in his carrier. That said, he's almost grown out of it... 3-4 more pounds. Anyone have suggestions for one that holds more than 25 lbs??