Two more days. So what has 32 taught me...
It’s taught me that no matter how much people say you can be dependant on them, the best course of action is to depend on yourself because they won’t always be there even if they say they will. People don’t care what’s going on in your life and probably won’t care even if you tell them so stick to yourself and take pride in the fact that every day you wake up is a personal battle that you’ve won. You choose your friends and sometimes those friends turn out to not be nice people so don’t waste your time on people that don’t consider your feelings and help protect you from your dark side because that’s what real friends are supposed to do.
Most importantly, love yourself. Between broken hearts, tears, betrayal, disappointment, and all the other negative things I’ve dealt with being 32; I’m the only one I’ve got and I will always love how strong I am on the inside in order to deal with all the shit this world throws at me.
#itcouldbeworse#bestrong#selflove#independent#handleit#yougotthis#anotheryearolder#reflection#2days #32 #33
And it is finished. I finally posted my blog about my first Stelara self-injection, my optometry visits, my ganglion cyst trilogy, and the rest of my appointments and shenanigans for the past few weeks.
Crohn's makes my life a little crazy sometimes. It can be anything from new symptoms to new problems, feeling okay one minute and ill the next, and going to numerous doctor visits and getting medications and blood tests.
I hope you take a moment and catch yourself up with what has happened in my life. My Crohn's. My Fibromyalgia. Lumpy. My eyes. New columns. Blood draw chaos -- I'm sure something has happened in my days that you'd find humorous. 😷👀💻👋🏻💉💊🤪 ➡ Link in Bio ⬅ #itcouldbeworse#crohns#fibromyalgia#invisibleillness#chronicillness#ganglion#blog#writer#phlebotomy#veteran#shotsshotsshots
Well, today was a success. I gave myself my first Stelara self injection for my Crohn's disease management and I videotaped it with information about giving yourself a shot of medication. I was super nervous, shaky and really anxious for some reason, even though I'm a phlebotomist and IV tech, and I've given myself Humira shots in the past. I got up my nerves and finally injected. You can watch the video if you like, it is shared on my Facebook - It Could Be Worse Blog - and the ➡ Link Is In Bio ⬅ for now. Thank you all for the support today. I really needed it. #💩 #💉 #crohns#itcouldbeworse
I've created my first YouTube video, focusing on my Crohn's Emergency Kit -- ⭐Link in Bio & Below⭐ -- so tell me, what do you keep in your own kit? 😷💜 If you're like me and suffer from Crohn's disease or IBD, you know you have to be prepared for a number of things that could happen. That's why having a Crohn's Disease Emergency Kit is a smart thing to do.
From packing in case of accidents to packing the essentials, there are quite a few things that Crohn's disease patients may want to take with them wherever they go. I keep items in case of emergencies and essentials I think I need as an IBD patient and Crohn's disease warrior.
#crohns#emergencykit#itcouldbeworse 🔗 🔗
Tomorrow, my beloved St. Patrick's Day, is my 2-year Crohn's diagnosis anniversary and I'm still in the same position I was in 2 years ago, the same position I was in 4 years ago.
Most of the time, this is how you'll find me. I spend a lot of my days in my second office, my spare bathroom, my Crohn's room.
Most of the time, this is how you'll find me. Hunched over, battling pain through the cold chills & hot flashes, the waves of stomach spasms & urgency.
Most of the time this is how you find me. Waiting for this moment to be over, I countdown minutes, sometimes hours that I spend in here.
Most of the time this is how you'll find me. I get so many symptoms that even my symptoms have symptoms.
And I'm gaining new symptoms & problems every day.
4 years ago, you wouldn't have found me this way. 4 years ago, I didn't even know what Crohn's was, let alone had I ever suffered pain & suffering like this. 4 years ago, my life was completely different.
2 years ago, I was diagnosed with Crohn's disease. After the long 2 years of trying to find my diagnosis, my Crohn's diagnosis came & I didn't know whether to be relieved, upset, or sick to my stomach. This is something I will live with forever.
I've had 2 surgeries - a perianal abscess & a fistulotomy, 5 colonoscopies, 3 endoscopies, a double balloon endoscopy, 2 pill camera endoscopies, with countless scans & doctor visits. I'm on my 7th Crohn's medication and I have gained another diagnosis in that time, Fibromyalgia.
Today I wear IBD. I write IBD. I live IBD. IBD consumes my life in all aspects. Since then, I have started sharing my journey, I began writing for me & for others & I look forward to sharing and learning more.
I have turned my Crohn's diagnosis into my mission for awareness & education.
I have turned my chronic illnesses into my mission for recovery & healing.
I have turned my experiences into my mission to inspire & help other IBD warriors.
So, here's to better days & I hope this is not where you'll find me next year. 🔶 Full post link in bio + #itcouldbeworse#crohns
This is something you won't always see with an invisible illness - the home care and self-care of dealing with chronic illness.
Today my back started acting up, not sure the culprit, but I've had problems sitting, walking, bending over, etc.
I could blame my Crohn's disease for causing joint and body pain. I could blame the new Fibromyalgia diagnosis, tender and painful areas can happen all over. I could blame Myrtle and my ovarian cysts, they could be causing the discomfort.
No matter the cause, home care is a major factor in self-care and disease management because self-care IS health care.
Whether it be using a TENS unit for back pain, knowing which medications to take for each pain and when, staying in bed a little longer, grabbing a heated blanket for cold chills, or even baby wipes for, well, ya know... it all counts. Taking care of your body outside the doctor's office is just as critical as their treatment.
So I've sat here tonight, TENS unit on with my back not as bad off. I can actually walk now but who knows what tomorrow will bring... with chronic illnesses you never know what is going to happen or how you are going to feel. Take care of yourself as much as you can and take each day as they come. . . . oh, and my latest blog is posted - Always Another Appointment, so hit that link in Bio.
This is the visible portion of my invisible disease. Medication bottles, I have hundreds. There's around 27 in this photo alone. Medical files, I keep a detailed 4inch binder full of appointment reminders, prescription orders and test results. Medical bracelets from every procedure, because you know I keep them all. These are small but significant mementos from the last 4 years of my Crohn's disease journey.
Now, I hang this wreath on my office door, where I do my writing or editing, sharing my Crohn's story whenever I can. I hang this wreath on my office door, not only as a reminder of my IBD journey, of how far I've come and how far I still have to go, but to bring inspiration for sharing my battle, the good and the bad, and to bring inspiration for sharing my patient perspective and insight to all things Crohn's disease and health.
This disease takes its toll on patients but it often goes unseen. Here is to always bringing awareness, here is to sharing my journey, here is to research and education, and here is to those fighting the Crohn's fight.
Well, folks, today's loading dose infusion of Stelara went as well as expected. As usual, I'm exhausted and I have no energy. I'm beyond tired and today was a long day at the VA for me. I had a consultation with rheumatology and I gained a diagnosis of Fibromyalgia. This is something that I have been expecting for a while and the doctors confirmed my self-diagnosis. I suffer body pains and fatigue that you can't imagine. This also includes freezing to death, the night sweats I get, and, my constant low-grade fevers. So many of my issues can be blamed on my Crohn's and this new diagnosis explains the symptoms I can't blame on my IBD. I'll have another day off appointments tomorrow for an MRE on my stomach to see my small bowel but I'll also try to knock out a blog explaining more. Until tomorrow, ✌🏻 #crohns#fibromyalgia#itcouldbeworse#stelara
This is how I get to spend my evening. I get to work all day and then come home to a lovely gallon of bowel prep. I am getting my 5th colonoscopy tomorrow to check and see how my #Entyvio infusions are doing and to see how my Crohn's is managing. I have not had a colonoscopy in a few years but I have had pill capsules. We are doing the scope because we need to take biopsies, so I am sure I will feel miserable tomorrow and the next day. This is the life of a Crohn's disease Warrior, we get to do these fun liquid cocktails yearly if you're lucky like me. I would never wish one of these on my worst enemy, the prep is worse than the scope itself. I will try to keep you guys updated tomorrow about how my scope is going. I am sure I'm going to be miserable and irritable and hungry as ever. Fingers crossed this bowel prep doesn't make me dry-heave too much. #crohns#itcouldbeworse
First shared with IBD News Today, I keep items in case of emergencies and essentials I think I need as an IBD patient and Crohn's disease warrior. If you're like me and suffer from Crohn's disease or IBD, you know you have to be prepared for a number of things that could happen. That's why having a Crohn's disease essentials kit and an emergency kit is a smart thing to do. ⭐To read more, link is in bio, too.⭐
Over the past 3+ years, I've kept every empty bottle of medication and it is shocking to see. I had two small boxes I'd been hording them in, got a large Tupperware bin and dumped them in. I'm not sure how many or what I'll do with them all, I have a few ideas though. If only people knew what us Crohn's Warriors go through, including all the medications, the scans and scopes, the blood tests and doctors visits, and, the waiting. The constant waiting - for relief, for remission, for an appointment, for the pain to end, for a cure. Oh well, it is what it is, enough rambling. I'll just continue to share my journey along the way. 😷👎🏻💊 #itcouldbeworse#crohns#medication #💊
In the third part of the series “Crohn’s Disease Questions,” I discuss food and other suggestions and comments I get about Crohn's Disease and IBD.
With chronic illness comes questions and suggestions of how to manage your IBD, from family members, friends, acquaintances and sometimes even strangers. Food questions or suggestions come from outsiders to our disease, from people trying to figure out their limitations, gain ideas about their disease, understand others' suffering, or find how patients manage and live with IBD.
From basic questions to food suggestions, to the questions that can hurt feelings, I'll address the questions I've been asked and hopefully shine a little more light on the topic of IBD and what to ask, and what not to. 😷💜 #crohns#itcouldbeworse
What better way to end the day than with a blog... This weeks post - Schools Out For Ever - is now LIVE! Check out what this week had in store and see my blog for everything else going on! Thank you a billion times to my followers. I do this for all of us Crohnie Warriors. 🖤😷 #crohns#itcouldbeworse
Gaaahhh! My latest #blog post is finally done. It only took me two weeks to write another one and get all of the extra work finished with it. This week, Entyvio Infusion #2 and catching up with my life. Thanks to those of you who keep up with me.
Note the photo, I got 2 more bracelets added to my collection this week, and what better way to represent me than my house shoes. I was gonna crop me out, but nah. Good night and good morning to all of you. I'll see ya in the am when I go to get donuts. Xoxo #crohns#itcouldbeworse
A year ago today I was given a gift, a curse, a problem but no cure. I was given a life long battle that I would have to fight against every day.
After 2 years of struggling against my own body, I was finally given a diagnosis of Crohn's disease and my life would continue to change thereafter.
Today marks my 1 year anniversary of diagnosis, a day that will follow me for the span of my life. - And, to top it off, I was diagnosed on my beloved St. Paddy's Day. The luck of the Irish is not with me.
Today I wear IBD. I write IBD. I live IBD. IBD consumes my life in all aspects.
Since then, I have started sharing my journey, I began writing for me and for others, I have been nominated as a top Crohn's blog, and I have even been offered an invitation for a GI Advisory Board position. Who knew that this would be the path that my Crohn's diagnosis would take me on?
Happy 1 Year Anniversary to me and my Crohn's. I look forward to sharing more. It Could Be Worse. 😂💜🍀 #cureforibd#ibdnewstoday#crohns#Itcouldbeworse#shinystarskywall#blog
We’ve been at Manchester Airport since 7:45 this morning. New flight delayed for another 30 mins because of thunderstorms in Frankfurt 🌩
On the plus side, I’ve met some lovely people but when you’re having one of those days... you’re having one of those days 😂😂😂
28 11605:05 PM Jun 11, 2018
Yesterday started off great! Helped TWO more ladies get started with our ☀️Sweet Summer Surrender☀️ group (check my latest live video to see the info! No more FOMO or skipping out on the fun!!)
Evan went out to the cars and my tire was flat. •
Thank goodness my mom watched the kids today so I could take her truck to work, my father in law had AAA here to put on the spare, and it all worked out.
I will need new tires and even though I have 3 paychecks left this school year...there is ZERO worry because of coaching. 🙏🏼
There seriously isn’t a better feeling than helping other busy women bust through their obstacles, finally feel better, more confident and more energetic. Freakin love this part time side gig! 💕💕
If you want to be a part of something bigger, make a difference and hey, maybe even earn and income from home and get all access to these groups?
Let’s chat! Our team is growing!! 💕🙌🏼✨✌🏼